Try to keep up your quality of voice because with Parkinson's, you tend to lose it and your voice gets much softer. Sing around your home. That will not only improve your voice,...
I enjoy writing. "Come Look With me Through the Eyes of a Child", "Johnny Bill writes you a Letter," "My Grandma is Just an Older Mommy" and "Whispers of Hope" are all books I ha...
Keep a supply of your medications in your purse or wallet in case of emergency. You never know when delays happen e.g. a car breaks down or you get stuck etc. A backup supply ens...
You may feel that you need to describe Parkinson’s from A to Z and what they will expect over time—but children are often satisfied with just the here and now. For example, I expl...
If I am going to deliver a speech, it is essential that my meds are on. I actually over-medicate myself before speaking. I also warm-up my voice because to public speak, I need mo...
It took me 2 years to get the courage to go to my first support group meeting. At the time they were meeting at the local funeral home so the first thing I did when I got more in...
I went through two years of depression which was quite mind-bending. My voice was getting weaker, my thought process was slower. I would try to time the conversation to get in an...
Getting involved in a support group is definitely one of the important things to do in my opinion. I didn’t attend any support group events until ten years ago, when a friend ...
I had spent my whole career working in New York City as a litigator—a job that put me under intense pressure. It was typical for me to lie awake in the middle of the night w...
First, I must say that what Janet Reno has stated is pretty much the key-- Parkinson's treats everyone different and you need a sense of hope. Having a positive attitude is most i...
Posture is a huge factor as with PD I tend to hunch over. Now, I wear a device that pulls my shoulders back and it makes me feel significantly better when I wear that device. It i...
I have found inspirational and motivational clips on YouTube very helpful. When I get stiff and can’t move I watch the clips. I do this in a place that has a sloped ceiling which ...
Believe it or not, I was never depressed upon hearing I had Parkinson’s––why I will never know. Probably because I have a positive nature. In my opinion, the worst fear is the fea...
Getting involved in a support group is definitely one of the important things to do in my opinion. I didn’t attend any support group events until ten years ago, when a friend pers...
I think it muddies the water. People care about the bottom line—you have to show people what is in it for them. Whether or not I have Parkinson’s doesn’t affect whether my idea is...
Below is a condensed version of a conversation I recently had with my grandchild. "Although her body's changing, her soul is what I see. So what if grandma's shaking. She's still ...
Make sure you have a neurologist who knows Parkinson’s.  I also recommend that you have your neurologist review any prescribed medicine from other doctors so as to ensure that it ...
I spent over 20 years at sea ending up as a chief engineer on big ships such as oil tankers. It took a while after being diagnosed, but I concluded that there was no use in denyin...
If you can laugh at yourself and your clumsiness and not curse every time you stumble, it makes things easier. The other day, I was walking the neighbor’s toy poodle because the d...
Don't think you must give up working when you receive Social Security Disability. You CAN work AND you can even get paid for it!. First find your Ticket to Work (you received ...
If your meds are working OK then you have an opportunity to live your life for the next ten minutes or for the next five years. I think it is important to find something in life...
You need to see the humor in life. The first time I actually laughed about Parkinson’s was on a Christmas morning a few years ago when I opened a small package lovingly bought ...
You can’t sit in a recliner and feel sorry for yourself. You have to get out of the chair and live life. Do something about it. You have to keep trying.   Cherie Zaun was a p...
I look at it this way. I have a disease that is very hard to explain. If I were to tell people how I actually feel, people might be very depressed. At this moment, every inch of...
I have just recently started back with my local Curves. I had back surgery a year ago and although I still have times of pain, I try to get some form of exercise in. I had deep br...